The Netherlands
Dutch families are launching the first estafette, traveling by foot and bike across all provinces. Proceeds will support the Amsterdam research hub’s inclusion of more STXBP1 families in the Natural History Study.
Spain
During the month of August Spain will start to prepare for September, the month of awareness and visibility for STXBP1 Syndrome, and at Fundacion Lukiss in Spain….
They are launching a major solidarity route that will cross Spain from the north, south, east and west; joining forces until reaching the center, which will be the connecting point with the rest of Europe.
Every step, every stage, will be a show of unity, visibility and hope for the entire Spanish STXBP1 community.
In addition, they will raise funds to support research and improve the quality of life of our children, setting a goal of 5,000 euros."
We move, we unite and we make the invisible visible.
Germany
Whether on foot 👣, by bicycle 🚴 ♀️ or in a wheelchair:
Join Germany's symbolic relay race across Europe - we from the STXBP1-Team Germany 🇩🇪 are there!
📩 Here's how you can participate:
Get in touch with us by mail or DM, Katja or Fabienne - we will send you all the information!
🎬 We will create a route throughout Germany 🇩🇪 and pass your video on to ESCO - so that Germany becomes part of the European relay video! 🌐✨
🎯 Our objectives:
🔹 Create awareness for STXBP1
🔹 Connecting Families & Communities
🔹 Promote research & support
🔹 Put a strong sign of hope 💪💜