Aims: The facebook group is for parents, grandparents and proffesionals, and has currently 84 members. The group mainly serves as a platform for the Scandinavian community to connect and share experiences. In Summer 2022 the group had a first family meeting, a great way to meet other Stxbp1 families. They plan to have a family meeting again sometimes.

Link: https://www.facebook.com/groups/387730391891027/

Contact:  lone@jelva.net