Spain
Asociación Síndrome STXBP1
Aims: A non-profit organization representing 32 STXBP1 Spanish families and more than 400 members. The main goals are the visibility, family support and investigation of STXBP1 disorders.
Link: www.stxbp1.es
Instagram: @stxbp1
Contact: info@stxbp1.es
Spain
Fundación Lukiss
Promovemos la investigación, el diagnóstico y tratamiento para garantizar el bienestar de quienes conviven con una enfermedad asociada a la mutación del gen STXBP1.
Link: https://www.fundacionlukiss.com/
Instagram: @fundacionlukiss
Contact: maria.paramio@fundacionlukiss.com
