The 2025 STXBP1 Summit, hosted by the European STXBP1 Consortium (ESCO), takes place in Heidelberg, Germany. This event, scheduled from October 8-11, 2025, includes a Research Roundtable from October 8-10, followed by a Family Summit on October 11. The summit aims to bring together researchers, clinicians, and families affected by STXBP1 disorders to discuss advancements, share knowledge, and foster collaboration. Set in the historic and picturesque city of Heidelberg, the event promises to be a pivotal moment for the STXBP1 community, driving forward the understanding and treatment of this rare neurological condition.
Family Day on October 11
The Family Day will take place on Saturday, October 11, 2025, and we warmly welcome all children & adults with STXBP1, as well as their parents, caregivers and siblings. This day will provide you with the opportunity to learn more about STXBP1, engage in discussions, and connect with other families, researchers, and clinicians.
The family registration is now open on a first come, first served basis. Participation will be free of charge. To ensure that as many families as possible can participate, we kindly ask you to limit the number of attendees per family.
Research Conference
In addition, from October 8-10, 2025, the Research Conference will bring together scientists, industry representatives, and clinicians to present the latest research developments.
