Eight countries across Europe came together this September for STXBP1 Awareness Month, uniting to raise awareness of STXBP1-related disorders and to stand together in the search for a cure. Families and friends from Italy, Spain, France, Israel, Denmark, the Netherlands, Belgium, and Germany joined forces—covering countless kilometers and spreading hope across the continent.
This video was a collaborative effort with parents and families across ESCO countries and premiered during the European STXBP1 Summit in Heidelberg. We are deeply inspired and motivated to see what we can achieve together in 2026!
Thanks to the incredible energy and dedication of everyone involved, nearly €25,000 was raised through local fundraisers during this year’s campaign.
Watch the video and feel the power of our community united for change!